This past year has been so exciting it's kind of hard to know where to start. Traditionally we always end the year with a review of the top news items—and this year the news was amazing—too many to just limit it to a Top Ten so we have expanded the news items to try to capture what we believe were the top stories.
As we speed along to a cure for everyone it's important to remember that the current and future obstacles will be identifying the undiagnosed people with hepatitis C and streamlining everyone with hepatitis C into medical care. I hope that you will help us by taking on some form of advocacy whether it's talking to others about hepatitis C or providing the much needed education and support. We are all in this together and the only way we will be able to conquer hepatitis C is by all of us working together and advocating for the needs of others.
With this in mind, the staff of the HCSP/HCVAdvocate.org wish you a happy, prosperous and healthy New Year.
1. January 2013 HCV Advocate
In This Issue:
- Top News of 2012
Alan Franciscus, Editor-in-Chief—see what the staff came up with for the top of the list
- HCV Snapshots
Lucinda K. Porter, RN—Lucinda writes about a six year study of people with compensated cirrhosis, a new treatment for low platelets, overcoming barriers to care and reaching the difficult to reach patients.
- HealthWise: - Fifteen Years of HCV Advocacy
Lucinda K. Porter, RN—Lucinda recounts her years in HCV advocacy. Lucinda is such an awesome HCV advocate and we are lucky to have such a strong advocate in our corner.
- Review of "The Partner's Study"
CD Mazoff, PhD—Dr. Mazoff reviews one of the largest and important studies about sexual transmission of HCV—a must read!
- AASLD 2012: Part 2
Alan Franciscus, Editor-in-Chief—We continue our coverage of AASLD with information about various DAA's combined with PEG/RBV that will be next wave of medications approved to treat hepatitis C.
- Incivek Rash Warning!
Alan Franciscus, Editor-in-Chief—This is incredibly important information for people who are currently taking Incivek. Although the severe rash warning are rare, it's something that everyone including patients and providers need to pay attention to.
2. HBV Journal Review by Christine Kukka —In this month's column Chris reviews the following studies. Hepatitis B is a complicated disease to understand and manage. Christine's monthly review provides much needed information to stay up to date and live healthy with hepatitis B :
- Can Hepatitis B Patients Ever Stop Taking Antivirals? Researchers Say No
- Tenofovir Found Effective in White Teens with Genotypes A and D
- Tenofovir Effective in Patients with Advanced Fibrosis and Cirrhosis
- Entecavir Reduces Liver Cancer by 10%, Compared to No Treatment
- Impact of Hepatitis B on Pregnancy
- Studies Find Hepatitis B Vaccine Protection May Wane in Late Adolescence
- Silymarin Appears Beneficial in Drug Combinations
- U.S. Doctors Play Key Role in Screening Asian Immigrants for Hepatitis B
- Hepatitis and Alcohol Abuse Contribute to Increase in Liver Deaths Among Addicts
- Formula Proposed to Treat and Monitor HBV Patients When They Receive Immune-Suppressing Drugs
3. HCV Drug Pipeline—has been updated to include the most recent news items. Please note that we are in the process of redesigning our pipeline to (hopefully) make it easier to navigate and update. We will let you know once we complete the update and we would appreciate any constructive feedback to make it better!
4. HCV Advocate Ultimate Quiz – Our Quiz Is Back! Check out your knowledge of HBV and HCV in this fun and interactive game!
Test Your Knowledge:
Take the HCV Advocate
This Quiz works best in IE
(If using Firefox, reload Quiz to get sound)
5. Hepatitis C: The Baby Boomer Virus: Lucinda K. Porter RN at TEDxGrassValley
To watch this great video click here
Please help us spread the word to people to inform them of Lucinda's presentation and why Baby Boomers should be tested for HCV.
Action Alert: Urge Your House Representative to Sign Bi-Partisan Letter Calling on USPSTF to Change Its Hepatitis C Recommendation
How you can help:
Please call your House Representative's Washington, DC office as soon as possible, and before January 4, 2013 (the deadline for signing the letter).
7. Training Schedule – Don’t forget to keep checking our Upcoming Training Workshop Schedules to see if we will be in your neighborhood soon!
Don’t forget that there is help as close as a phone call – the 877-HELP-4-HEP line (877-435-7443) is available 9:00am to 7:00pm Eastern Time. For more information about the services they offer either call or visit their Website at www.help4hep.org The helpline is run by The Support Partnership: a group of non-profits working together to help people affected by hepatitis C.
8. Check Out Our News (Blog) that is being expanded to include our pipeline
and much, much more…..
Executive Director, Hepatitis C Support Project
Editor-in-Chief, HCV Advocate www.hcvadvocate.org
Editor-in-Chief, HBV Advocate www.hbvadvocate.org
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