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Helpful Links
Hepatitis C Resources on the Web

Explore the online resources below to learn more about hepatitis C.

For links to online support forums, listservs and chat rooms, click here

Radio:
Hep Chat, the weekly radio program of Hepatitis C Victoria, is a grounbreaking and innovative 30 minutes weekly radio program that focuses on hepatitis C and harm reduction. The podcast link address is: http://www.3cr.org.au/aggregator/sources/5430

It can also be heard live on the internet. The streaming link address is: http://www.3cr.org.au/3cr_streaming

 

UNITED STATES AND CANADA

AACLA
African American Coucil on Liver Awareness (AACLA) - A non-profit organization consisting of African American professionals in the field of medicine, social service and community-based organizations, lending their expertise in the gathering and disseminating of information as it relates to African Americans and liver disease. For information, contact the AACLA at: 1.816.761.8472 http://www.aacla-national.org

AIDS Action's Hepatitis Hotline - 1-888-443-4372

American Liver Foundation
Patient materials on all types of hepatitis

Americans with Disabilites Act
For information and technical assistance about the Americans with Disabilities Act (ADA) contact the ADA Information Line 800-514-0301 (voice) 800-514-0383 (TTY). ADA Specialists are available to provide ADA information and answers to technical questions on Monday, Tuesday, Wednesday, and Friday from 9:30 a.m. until 5:30 p.m. or on Thursday from 12:30 p.m. until 5:30 p.m. (Eastern Time).

CalHEP
The California Hepatitis Alliance (CalHEP) seeks to reduce the scope and consequences of the hepatitis B and C epidemics, which disproportionately affect California’s ethnic communities and the socioeconomically underserved. Committed to culturally competent public education and awareness, CalHep focuses on sound public health policy and advocacy to improve California’s public health approach to liver wellness.

Center for Addictive Problems - CAP
Provides information on treatment and recovery from addictive problems. Located in Chicago and Maine. (Note: problems opening this site in IE8; use Firefox)

Centers for Disease Control – Hepatitis
Information on HAV,HBV and HCV - simple and easy to understand. Patient materials in English and other languages.

Centerwatch
Centerwatch list of hepatitis C clinical trials by state

The Combo Survival Guide A to Z
Created with the assistance of Dr. Hoofnagle at the NIH, this group of 3 ladies produced a beautiful guide to surviving treatment. Although the guide is for combination therapy with interferon and ribavirin it remains very useful for all patients on therapy.

Dietitians of Canada
A good resource for nutritional information for providers and patients.

DocMisha.com
Information on Eastern treatment and healing approaches by Misha Ruth Cohen, O.M.D., L.Ac. Features include an overview of Chinese medicine, HIV Wellness Center, and Hepatitis Help Area.

Dr. Ben Cecil's Website
Offers information on the treatment and advocacy of hepatitis C offered by Ben Cecil, MD. Features include a medical photo gallery with clinical photos and captions.

Drugs@FDA
Drugs@FDA, a piolot project, is a searchable Web site containing information about prescription, over-the-counter, and discontinued drugs. It includes links to drug approval letters, labels, and review packages.

Drugwatch
DrugWatch.com is a comprehensive Web site database featuring extensive information about thousands of different medications and drugs currently on the market or previously available worldwide. DrugWatch.com includes up-to-date information about prescription and over-the-counter medications and includes details about associated side effects to aid in the protection of patients and consumers.

Fisher's Specialized Pharmacy Services
An independent, full-service pharmacy specializing in hepatitis and HIV medications. Also includes general information about prevention,diagnosis, treatment, and support for hepatitis C and HIV.

GastroHep.com
The global on-line resource for all aspects of gastroenterology, hepatology and endoscopy.

Genentech
Pharmaceutical web site that features information on hepatitis C with resources for medical providers and patients. Offers various services for people on HCV therapy including assistance with insurance reimbursement. May also provide medications at no cost based on financial need for those that qualify.

Health Canada
This link brings you to all of Health Canada's resources, programs and publications on hepatitis A, B and C in both English and French.

Hep C Caring Ambassadors Program
HCV Manual from Caring Ambassadors Program: Hepatitis C Choices. This wonderful resource is some 400 pages long. It covers all aspects of treatment including Western allopathic medicine, ayurvedic, naturopathic, TCM and Mind-Body work….and much more. You’ll be amazed.

Hep C Connection
HepC Connection is a unique support system established in Denver in October 1995 to assist HepC-challenged individuals and their families.

Hepatitis C Indiana
Hepatitis C Indiana is a social networking site designed to provide a platform where Hoosiers with Hepatitis C, their family and friends can connect. The site includes links to Hep C groups, forums on a variety of topics relating to Hep C, resources, events, and so much more. This is a site created by and for people with Hepatitis C.

Hep C Quilts
The Hep-C quilts are made up of patches submitted by people from all over the world with Hepatitis C. They are sewn together by Marie Stern in her spare time. Marie possibly contracted the HepC virus in 1978 and Auto-immune Hepatitis several years later, and this is her way of helping the HepC community to be heard and seen. The first quilt was created in 1996. It became so large that Marie started a separate one a year later. There are now four quilts for display with the fourth one having blank squares to be filled in at functions. (new photos to be displayed soon) The quilts are available for display at various public and private functions.

Hep C University
Hep C University is an educational website designed for HCV providers seeking to learn the latest information on the treatment of Hepatitis C

Hepatitis C Advocacy Network
Hep C Advocate Network, Inc., (HEPCAN), a non-profit is national organization started by persons living with hepatitis C, persons with loved ones living with hepatitis C and medical professionals working in the field of hepatitis C. Features included education and advocacy.

Hepatitis A, B, and C Prevention Programs Information and Programs for People at Risk
This website showcases programs across the United States that work to prevent hepatitis A, B, or C in people who are at risk for infection. The site also features general information on hepatitis B and hepatitis A vaccination, special topics related to viral hepatitis, and links to other organizations and resources.

Hepatitis C Association
Provides education on the hepatitis C virus for the general public and for medical professionals. Promotes awareness of hepatitis C through programs through prevention, protection and healthy practice programs.

Hepatitis C Multicultural Outreach
Offers free screening, testing and counseling for HCV, HIV, STD and adult vaccinations, with particular focus on the African American, Hispanic/Latino and the Native American communities where health disparities flourish.

Hepatitis Education Project
Created to help raise awareness among patients, medical personnel and the public about the facts concerning hepatitis patients and the resources available to help those who live withthe disease. Highlights include newsletter, links, and support group handbook.

Hepatitis Foundation International
The Hepatitis Foundation International (HFI) is dedicated to the eradication of viral hepatitis, a disease affecting over 500 million people around the world. We seek to raise awareness of this enormous worldwide problem and to motivate people to support this important – and winnable – battle.

HepCBC
Informational site providing resources, education, and support for the hepatitis C community. Features include a newly diagnosed section, art for healing gallery, and a hepatitis C culture page which lists films and music about hepatitis C. Home of Peppermint Patti's FAQ (English & Spanish) the Advocate's Guide to Hepatitis C, and the hepc.bull.

hepCmeditations project
Home of the audio CD “Self-care for Hepatitis C: Applied Meditation for a Healthy Liver” by Margo Adair and Robin Roth.

HepTREC
The Delaware Valley Hepatitis Treatment, Research and Education Center (HepTREC) is a not-for-profit organization established in 2002 to reduce the impact of viral hepatitis in the Delaware Valley.

hivandhepatitis.com
Provides accurate, timely information about treatment for HIV/AIDS, chronic hepatitis B and hepatitis C, and co-infection with HIV/HCV and HIV/HBV. New information is posted regularly.

Immunization Action Coalition
Showcases programs across the United States that work to prevent hepatitis A, B, or C in people who are at risk for infection, including adults and adolescents.

InterMune
Pharmaceutical web site that features information on hepatitis C with resources for medical providers and patients

Janis & Friends
Hepatitis C message boards, education, and support offered in memory of Janis Morrow.

Liver Health Today
Liver Health Today (formerly Hepatitis Magazine) is the single national magazine dedicated to patients of hepatitis B and C. This quarterly resource is designed to assist hepatitis patients and their families in taking control of their health care by providing current, comprehensive information in one source. Includes current issues, archives, subscription information, and support information.

Medical Advocates for Social Justice
The mission of Medical Advocates for Social Justice is to advocate for and facilitate access to timely and appropriate healthcare for all who have or are at risk of life-threatening endemic and epidemic infectious disease and who are disenfranchised from such access because of poverty and/or discrimination

Medscape – Hepatitis C
Information for medical providers and patients. CME programs, ask the expert program.

NATAP
National AIDS Treatment Advocacy Project is a New York non-profit organization providing information and news on hepatitis B and C, and HIV. Features include newsletter, radio shows, and events.

National Canadian Research Training Program in Hepatitis C
The NCRTP-HepC seeks to build research capacity and awareness in hepatitis C that will one day result in better management of the disease by providing stipend support and training to graduate, post-doctoral students and MDs with demonstrated excellence and a passion for hepatitis C research. The training program employs the knowledge and experience of twenty-eight mentors across Canada from multiple disciplines; each mentor is recognized for their expertise in various areas of hepatitis C research and their ability to train excellent researchers.

National Conference on State Legislators Web Site
Follow this link for a State by State List of Pharmaceutical Assistance Programs for Seniors, Disabled, Uninsured and others.

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDH), NIH
Simple and easy to understand patient information and brochures on hepatitis C.

National Institutes of Health, Alternative and Complementary Medicine – Hepatitis C
Information on various forms of complementary and alternative medicine including herbs.

National Training Center for Integrated Hepatitis HIV/STD Prevention Services
The National Training Center provides training to frontline workers in community based organizations and clinics on hepatitis prevention, diagnosis, management, treatment and integration.

NIH Consensus Development Conference on Hepatitis C
The consensus statement for the NIH Consensus Development Conference on the Management of Hepatitis C: 2002, held June 10-12, 2002, is now available on the Office of Medical Applications of Research (OMAR) Web page.

O.A.S.I.S Clinic
Information for patients--personal stories and on-line videos featuring real people with hepatitis C.

Parents of Kids with Infectious Diseases
Supports families whose children have been affected by viral hepatitis, HIV/AIDS and other diseases, and educates the public about effective disease prevention practices. Highlights include organ donation, help for families, and a Just For Kids section.

Patient Assistance Programs
Patients will be directed to the public or private programs most likely to meet their needs. The Partnership for Prescription Assistance helps qualifying patients without prescription coverage.

Prisonplace.com
A place for families and friends on the outside. We have designed PrisonPlace.com to be an online community that is specifically designed for families and friends of inmates; inmates; and anyone looking for information, news, and support regarding prisons or prison related issues.

San Luis Obispo County Hepatitis C Task Force
Offers health and benefits counseling, financial assistance, volunteer services, informational forums,and testing information for the hepatitis C community.

Schering
Pharmaceutical web site that features information on hepatitis C with resources for medical providers and patients. Offers various services for people on HCV therapy including assistance with insurance reimbursement. May also provide medications at no cost based on financial need for those that qualify.

Sex & Hepatitis C
A great site dedicated to helping sufferers sort out the risks of sexual transmission and learn the best practices for avoiding it.

Texas Liver Coalition
The Texas Liver Coalition website offers updated information about hepatitis and liver disease, including answers to frequently asked questions. Visitors can also find locations of our Texas support groups for patients and their families. The site includes other practical information about liver disease, especially hepatitis C.

Three Rivers Pharmaceuticals
Pharmaceutical web site that features information on hepatitis C with resources for medical providers and patients. Offers various services for people on HCV therapy including assistance with insurance reimbursement. May also provide medications at no cost based on financial need for those that qualify.

Veterans Administration – Hepatitis C Resource Center
Click on “Education” and then “Provider Education” for a thoughtful and up to date review of current drug therapies and much much more. Keep in mind recommendations are based on study population, i.e., veterans, primarily males.

Wisconsin Hepatitis C Program

World Hepatitis Alliance
World Hepatitis Day is coordinated by the World Hepatitis Alliance, a non-governmental organisation that represents approximately 200 hepatitis B and hepatitis C patient groups from around the world. As a coalition of advocacy groups, the World Hepatitis Alliance is a global voice for the 500 million people worldwide living with chronic viral hepatitis B or C.


AUSTRALASIA

Australia:

Radio:
Hep Chat, the weekly radio program of Hepatitis C Victoria, is a grounbreaking and innovative 30 minutes weekly radio program that focuses on hepatitis C and harm reduction. The podcast link address is: http://www.3cr.org.au/aggregator/sources/5430

It can also be heard live on the internet. The streaming link address is: http://www.3cr.org.au/3cr_streaming

 

ACT Hepatitis Resource Centre
www.hepatitisresourcecentre.com.au/

AHCS - Australian Hepatitis C Support
www.hepcaustralia.com.au

Australian Hepatitis Council
http://www.hepatitisaustralia.com

Hepatitis C Council of NSW Australia
An independent community-based organization providing information, support and advocacy to people affected by hepatitis C in the state of NSW, Australia.

Hepatitis C Council of Queensland
http://www.hepatitisc.asn.au

Hepatitis C Council of South Australia
www.hepccouncilsa.asn.au

Hepatitis C Council of Victoria
http://www.hepcvic.org.au

Tasmanian Council on AIDS, Hepatitis C & Related Diseases
www.tascahrd.org.au

Hepatitis Council of Western Australia
www.hepatitiswa.com.au/

New Zealand

Hepatitis C Support Group of New Zealand
http://www.hepc.org.nz


EUROPE

European Liver Patients Association
This is an umbrella organisation made up of 13 patient groups from 10 European and Mediterranean Basin countries which seeks to ensure that treatment and care are harmonised across Europe to the highest standards.


Bulgaria
www.hepactive.org


England:

British Liver Trust

HepC Nomads
The Nomads is an educational forum where people planning on starting treatment can come and learn about treatment, how to prevent side effects and how to maximise their chances of achieving treatment success. Non responders or those not wishing to go down the treatment route can learn options for re-treatment or how to care for their liver. Also has a forum

Hepatitis C Trust


Scotland:

C-Level (Glasgow)

France:

Fédération SOS Hépatites

Hépatites

Reseau Hépatite Bretagne

Hepatoweb
Hepatoweb.com est une association à but non lucratif créer pour favoriser la présence de l'hépatologie, de la gastro- entérologie et de l'alcoologie sur internet et autres supports multimédia. Aider à la formation postuniversitaire des hépato-gastro-entérologues et médecins ainsi que leurs collaborateurs. Promouvoir l'usage des nouvelles technologies de l'information et de la communication au service de la médecine et de la santé.

Comité Régional d’Education pour la Santé d’Ile-de-France



Germany

http://www.hepatitis-c.de/
Information auf Deutsch, Amerikanisch und Franzoesisch. Hier gibt's alles ueber Ernaehrung bis Behandlung und Transplantation. Hat auch hep-art/logos und email Nachrichten.

http://www.leberhilfe.org
Ein Projekt fuer Deutsche Selbsthilfe Gruppen; in Conjunktion mit dem Deutschen Hep-Net.

http://www.elsevier-deutschland.de/
Hier ist die Online Version des "Roche Lexikon Medizin"--suche nach hep C and viel, viel mehr.



Italy

ASSOFADE
Fondazione per la ricerca ospedaliera sulla prevenzione, diagnosi e terapia delle malattie epatiche.


Netherlands

Nationaal Hepatitis Centrum
www.hepatitis.nl


Romania
http://hepatita-c.net/


Russia

http://www.hcv.ru


Switzerland

SEVHep
http://www.sevhep.ch/

The primary goal of the SEVHep is to maintain a Swiss network of competence in the field of viral hepatitis, focusing on both preventive measures and management of all clinical consequences, from acute to chronic hepatitis to cirrhosis and hepatocellular carcinoma. The group has published recommendations - essentially concerning hepatitis therapy and vaccination - in the official bulletin of the Swiss Federal Office of Public Health or in the official journal of the Swiss physicians (FMH).


INDIA
Society for Hemophilia Care- SHC India
Address of meeting: 129, Amberhai, Opp. Church, Sector-19
City & State: Dwarka, New Delhi-110075.

Days & times: Not held regularly
Contact Name: Vijay Kaul
Contact Phone #: 91 11 28080112,
Handset: 0 9810173448
Contact Email: admin@shcindia.org


MIDDLE EAST

Israel

HETZ
www.hepatitisonline.org
The only hepatitis C and hepatitis B organisation in Israel


SOUTH AMERICA

Argentina

Hepatitis C 2000
La Organización Hepatitis C 2000 trabaja desde fines de 1999 en todos los temas que tengan que ver con la hepatitis c y hepatitis en general.

El trabajo es realizado desde la Ciudad de Pinamar - Argentina - donde está su central y vía Internet desde más de diez países de habla castellana.


Online Support Forums, Listservs and Chat Rooms

HEPV-L
There is an excellent Hepatitis support discussion group (mailing list) in the USA called HEPV-L. To subscribe, send an e-mail message to: HEPV-L-subscribe-request@LISTSERV.ICORS.ORG
and in the body of the message type: SUBSCRIBE HEPV-L FIRSTNAME LASTNAME (that’s your first and last name).

Seeker's" Hepatitis C Support
http://forums.delphiforums.com/hepc/start

Hep C Web Warriors
Focus on alternative treatment


CHAT ROOMS:

HEP C-MO Telechats and Discussion Room
http://www.hepcmo.org/

Join us weekly for our toll-free, Hep C telechats, a place for information, education and general chat, especially for those who are not able attend support groups, The call is free and is scheduled every Tuesday from 7pm - 9pm Central Time (Please check for the time in your area). We're staffed with moderators and hep C professionals who are available to answer your general questions about hep C treatment and management. Weekly topics (Please note: We are not doctors. For questions of a medical nature, you will be referred to your primary care professional). For information, or to register for the chats, please go to:
http://www.hepcmo.org/, or if you do not have access to a computer, call: 1.888.436.HEP C (4372) to register over the phone and receive the phone number and access code.

Hep-C Heppers For Awareness http://forums.delphiforums.com/between/start

http://forums.delphiforums.com/hepc/chat

http://forums.delphiforums.com/
hopenow1/chat



HCVS - hcvsupport.org
A member-based online Hepatitis C support forum and chat room founded in 2005 and located in the U.S. Priding itself in offering worldwide support, encouragement and camaraderie to all afflicted with Hepatitis C through the first-hand knowledge and experiences of those who have the virus. Boards range from the newly diagnosed to those awaiting liver transplantation. There is also a board staffed by a licensed nurse practioner and registered nurse in the field of Gastroenterology/Hepatology to provide answers to common Hepatitis C and treatment questions.

Hepatitis Neighborhood

HepC Nomads (UK) Forum

http://janis7hepc.com/our_chat_room
_and_message_boards.htm




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